I keep asking myself what I’m doing. Or better yet I keep questioning what should I be doing? Part of me desperately wants to get back to life as normal. And so I have someone drop me off at the coffee shop down the street where I’ve spent way too many hours over the last two years. It feels normal to see old friends and to even to continue making new ones. In an effort to get back to normal the wife and I went out on a double date, I’ve scheduled a meeting or two, and I’ve been trying to frantically catch up on coordinating our second annual Compassion Vancouver event. In an effort to feel normal I try to walk as much as possible, do housework, and play and interact with the kids as normally as I used to. In an effort to get back to normal Jess has scheduled girl time with a couple different lady friends (though there’s never enough time!), we’ve done a couple mini-grocery trips, and run occasional errands. Normal stuff. Everyday life stuff.

But things still aren’t normal. My body still hurts; my back still feels as though there are ropes tying my shoulder blades together. My right side is still paralyzed and doesn’t work right; it cramps and as the day goes on my whole body stiffens and gets difficult and painful to move. I can’t bathe myself, I can’t drive, and can barely make it down the stairs from my bedroom without help. While my extreme emotions are not as extreme as they were even a week ago I still find myself having a short fuse with my wife and children. As a matter of fact the level of emotion in our family swings as quickly and extremely as our kitchen’s swinging door. The children, while early on ecstatic to be back at home with mom and dad quickly realized that life was not normal. Dad can’t play on the floor with them, he can’t pick them up, he can’t put them in bed, and he doesn’t have the same energy level he once did. Jones also knows that dad might have cancer and the thought plagues him. Every day he asks me if the tumor is benign. The kids recognize how stressed mom is, they recognize the burden she’s carrying, and they act up and intensify in order to compensate—and mom and dad have little physical and emotional energy to respond appropriately. We kind of constantly feel like bad parents as we respond in ways contrary to our normal parenting preference or methods. Knowing your parenting badly is a heavy burden to carry isn’t it? So we try to create breaks by having the kids spend time with grandparents—it is a blessing to have grandparents in town! But the kids want to be with us, they should be with us, they need to be with us…and yet we continually ship them off…because things are not normal.

I want them to be normal. I want to better participate in our Sunday Arnada Community Meal, to be available on Monday nights to dream the Grassroots Conspiracy into further reality, and to live into the rhythms that have defined our Community House for the last eight months. But the energy comes in spurts, the kids freak out in flurries, and my mental capacity to process through my schedule still seems off.

At times things feel almost normal. I want things to be normal. But things are not normal. Things can’t be normal. Things can’t be normal because we still have not received results from the Mayo Clinic. They told us that we should hear in the next couple of days. Of course they told us that we should have heard five days ago and they told us we should have known twelve days ago. If we find out results today that that I start chemo on Wednesday (I am completely making this up) normal will be defined very differently! If we find out tomorrow that a miracle has happened and the cancer isn’t cancer then on Wednesday normal will be defined very differently. If we find out tomorrow that we’ve got to wait another week normal will be very…well…

Until we get that message—whatever it is—this is normal I guess.

Maybe in-betweens ARE normal. I don’t know. I don’t know what I should be doing in this in-between. I think I’m going to keep trying to be normal—keep trying to go to coffee—keep trying to walk normal—keep trying to ignore my back pain—keep trying to not be a jerk to my wife—keep trying to be emotionally and physically present for my children—keep trying to work—or maybe I’ll just rest, continue to write my thoughts down, journal, let my back heal, read some books, and wait. Maybe I’ll do it all…or maybe I’ll just blog about it!

Thank you all for listening. My blog started in December of 2005 as a joke and has turned into a cathartic exercise that keeps me sane. I think its working!