But what about… (Staying Put part 3)

Building off of the previous two blog posts about staying put I feel compelled to write about my friend Christie’s appropriate question:

But what happens when you have done all the stuff and the majority of your neighbors could care less about what you are doing and are even a little annoyed by it?

That’s often the reality isn’t it? The problem with churches, the problem with business, the problem with our neighborhoods is that people ruin everything! If it weren’t for people I could have a killer neighborhood. (where’s a sarcasm mark when you need it?)

Seriously though, while I firmly believe that the individualism, hectic lifestyle, and materialism we’ve bought into in our culture are completely and utterly hallow and do not play a part in creating a life or a future worth living–they are still a magnetic draw to each and every one of us! It’s like a blue-lighted bug zapper that carries with it a strange and mysterious attraction even unto the bugs death. We are drawn to it.

So what do we do when our neighbors don’t care, don’t reciprocate, or even worse what if they find it offensive? Are there any ideas we can hold onto in the midst of the epic obstacle known as real people? Here are some of my random thoughts…

  1. Don’t forget the why–We are not responsible for changing people. The reason we commit to a people and a place (in my humble opinion) is because it’s redemptive and because it’s a better way to live. While we hope it is productive our goal is not production. Healthy relationships are never driven merely by production.
  2. Invitation and Imagination– Part of our role is to stretch the imagination of those around us. People might not respond immediately and we may never be witnesses to their response, but our hope is that by living differently and with intentionality we will stretch the imagination of those around us concerning how life can be experienced. It is an invitational stance, it’s a posture that invites others into new choices without pressure to do so.
  3. Patience–Patience sucks but it’s essential. Change rarely happens quickly. Stability kind of necessitates a long term approach.
  4. Hospitality– Hospitality is going to include rejection at times. Just remember that we’re being changed as much if not more than those around us.
  5. Baggage and Process– We can’t forget that we all have baggage and that everything is a process! We don’t know what baggage our neighbors are carrying (though on a larger neighborhood level it’s a great thing to find old storytellers in order to learn some of the baggage and blessing that the neighborhood itself already carries) we don’t know what hurts and past choices continue to define their response to you or those around them. Additionally we can’t forget that we’re all at different stages in a process of growth. I find that oftentimes my frustration is that you’re not at the place I’m at in my process! It makes me mad that you’re in a different place…and that’s a me problem not a you problem.
  6. Context– There’s no getting around the fact that some places are harder than others to make a dent. When there are no home owners its going to be harder. Where there are more single parents it’s going to be harder (more opportunities to serve but…man are those parents busy trying to simply survive!). Where there are more fences, garage doors, larger yards, or when there’s just an abundance of seemingly mean people it’s going to be more difficult. I don’t know if this means we just give up when we find ourselves in these types of places or if we buckle down and live more sacrificially…but I do know that some places are just hard.
  7. No loners— Practicing stability by yourself is hard. There’s a difference when people witness/experience somebody living differently and when they witness somebodies. Seeing a nice person is different from observing an alternative community. If we want to truly see neighborhood change I think its imperative that we have co-conspirators, that we don’t go it alone but work in partnership from the ground up. This will both sustain us as individuals and it will more likely create lasting change.
  8. Assumptions rob your soul– This is connected to #5, but assumptions about how neighbors should or will respond will absolutely kill you and rob your soul of the joy of giving. Assumptions rob you of the opportunity to extend grace in real and authentic ways. Being aware of our assumptions will allow us greater freedom in giving and will in and of itself give additional blessing to those around us.
  9. Just do it– When it comes down to it all we can do it just choose to do it. Regardless of outcome, regardless of reciprocity, regardless of everything that might fail our best option is simply to step out on a limb and practice radical hospitality because we believe that it’s the right thing to do. The hope (the ridiculous and audacious hope) is that either now or later love will win out.

Top 15 Things I've Learned About Fighting Cancer

(I could have typed a list of twenty…but here are fifteen in no specific order)

  1. Having a good medical clinic with not only doctors that you trust but a supporting staff that serves as your advocate is huge (thank you Northwest Cancer Specialists!)
  2. Physically and emotionally things can swing from amazingly wonderful to hell and back in a matter of hours. Finding that tension between living in the moment and realizing that it truly is just a moment is both important and difficult.
  3. Learning to be honest with yourself and with others about how you feel (both good and bad…though for me being honest with self and others about the bad was much more difficult) is hugely important not only for support but also for your health.
  4. Prayer works. I don’t mean to say that it works like some amulet or charm, that it’s a hocus pocus trick that if you get enough people praying you’re going to make it. But God does speak, he does act, and he does value our voices. In all of my healing (both emotional and physical) prayer has been central…and it makes a difference.
  5. I’d rather be sick than be the caretaker. This is harder for my wife than it is for me and she deserves all the grace, pampering, and vacations I can muster to show her how grateful I am.
  6. A loving and capable wife/caretaker covers a multitude of sins. If it weren’t for Jess I would not be doing as well as I’m doing now. I wouldn’t have always remembered or had the strength to take my meds and do the things I need to do to bring healing. From shots in the belly to chicken noodle soup, from acupuncture in my feet to being my private chauffeur she has covered every base and done it without complaining or faltering even once. Simply amazing.
  7. Being positive is generally easy when you’re constantly showered with support from a loving community.
  8. Being prayed over by your doctors is kind of surreal. Both my oncologist and my naturopath have held my hands and prayed over me in their office. It was a trip and it was pretty damn cool. Not only have both of these two docs prayed over me but they are actively working in partnership together (a very rare thing). What a blessing!
  9. Setbacks are a part of the mix but they don’t define it. Blood clots, pulmonary embolisms, side affects, headaches, vomiting, constipation, weight loss and weight gain, swelling, rashes, etc. came and went (though some seem to linger at times) but they are not the focus. It gets easy to be caught up in these ‘little’ things and forget the real task at hand: killing cancer.
  10. I’d rather be in pain (to an extent) than be constantly overwhelmed with exhaustion. When you’re so tired that you cannot physically function in any way and your brain is in a constant cloud its quite debilitating. At the same time, however, it doesn’t ‘feel’ like anythings wrong. I like that when I’m in physical pain I feel like I’ve got something to fight against, an enemy to beat. The exhaustion stuff was hard on the emotions and soul.
  11. Waiting is what you do. It’s just a part of it whether you like it or not. You wait for results, you wait for recovery, you wait in doctors offices, you wait…wait…wait. Get used to waiting.
  12. There are three ways that we have been blessed by people’s help: Routine, random, and offered. The routine help has been a lifesaver (no joke, i don’t say that lightly); knowing that someone will help us pick up our house on a few specific days a week allows us to focus on things like expending the little energy we have with our children instead of the dishes. Routine help has been wonderful. The spontaneous/random stuff has been great too: when people showed up with cups of coffee early in the morning or pints of ice cream in the evening, when people randomly watered our failing garden outside because they noticed it needed to be done…this kind of stuff brought tears to my eyes often. Finally (and I don’t say this in a jaded way) anytime people offered to help (even if they were unable to follow through) it was a blessing to be genuinely cared about. Even when it did not come to fruition the offers mean something to me and I am grateful.
  13. Supportive parents (on both sides) is such a gift. We couldn’t have gotten this far without our family (siblings included!!). Enough said.
  14. You don’t know what works…and you probably never will. If (when) the cancer is gone I won’t know if it’s because of your prayer, the natural supplements I take, the hydro-therapy I do, the positive energy in our life, the radiation, the chemo, the things I’m doing to make my body more alkaline, the food I eat, the acupuncture treatments, or something else! Most likely the answer is “all of the above” but all I can do is to keep doing the next most right thing.
  15. A story is always being told. In death, in life, in sickness, and in health our lives are telling a story. I hope my story is defined by its inclusion in one larger than itself (larger than myself!) that includes love winning, death being overrun, and peace reinging free. And I hope that regardless of my life situation the story I live is consistent with its inclusion in the larger narrative.

It Tastes Like Burning

I think I’ve figured out that I do better handling physical pain than I do the monotony of exhaustion, queasiness, and discomfort. Physical pain functions somewhat as an enemy that I can fight against while the other stuff seems to keep me more depressed and unplugged from life. It creeps up on you and doesn’t give you a direct enemy to stand up against. So I spend most of my week sleeping though Saturday, Sunday, and Monday I have a bit more energy. Saturday is reserved for my family, Sunday is my big social day as we have our community meal (though few realize that following the meal I literally sleep/rest from 4 ’till the next morning!), and Monday ends up being filled with prep for the week ahead(counting out pills, doing bills, etc.).

As far as an update, in the last week a new symptom has crept up where the skin on my sides and stomach feel like they’re on fire. The nerves are on edge and I spend most the day trying to keep a shirt, wife, or sheet from touching me. Today I talked to my doctor about it and guess what…I get to go back on steroids! The steroids are intended to reduce any swelling in my spine that could be causing the symptoms. Additionally today I’ll be going in for an MRI to make sure there’s no bleeding in my spine that could also be a cause.

All in all I’m a week and a half away from being done with my radiation and chemo treatments which means that I’m about five and a half weeks away from my first set of MRI’s that will show progress or digression in fighting against the cancer (the MRI I’m receiving today shouldn’t provide much valuable information at this point in time). Pray for that date at the end of September!

I miss being a part of y’alls life but I am still constantly amazed at how we’ve been  cared for. I could list off over 100 names of people who have brought us meals, helped pick up our house, or have sent gifts or cards. The good news is that now that I’m back on steroids I’ll be able to cry again as I think about how amazing you all have been (I’ve truly missed the gift of tears lately).

See you all soon (after August 24th hopefully)

peace.

Quilts and their stories

At any given moment my bed will be covered by a number of different blankets. Each one tells a story.

  • The ratty blue quilt that’s barely holding together, the one we take on picnics and to the beach was made for my by my wife. It’s the only full sized quilt she’s ever made and she made it for me. This quilt has been to two foreign countries (Texas and Portugal) and its been a mainstay since she gave it to me after I graduated from high school and before I left her for two long years. I love this blanket ’cause it reminds me of her.
  • The tan quilt was made by my family and was a gift to my wife and I for our wedding (ok, the ‘gift’ was about a year or two late). It’s got stitches from my nieces, my cousins, my sisters, my mom, and maybe even a few others. I love it ’cause it represents my family and my marriage to my wife.
  • We also have a giant quilt covered in awkward photos, funny quotes, and meaningful words. It was given to us by the Renovatus Church community when we waved goodbye to our six year long love affair with them in January. Each square was designed and made by a different person from that community. I love this quilt because it represents such an important part of my life that includes some of my most favorite people.
  • My mom made me a small blanket that is so worn it’s barely used. It’s covered in pictures of my family and its squares are made from fabric of my childhood. I love this quilt because it reminds me of my family and my childhood.
  • I have been given two quilts during my time fighting against cancer. One was made by my aunts and my grandma. It has the scent of frankincense (a scent important in the Christian story and also an important herb in fighting cancer). My sister and her whole church also made me a quilt. It was stitched on by strangers and loved ones alike and has ribbons stitched on that are associated with central nervous system cancer awareness. I love these blankets because they’re reminders that people are praying for me and my family.
I love the story that my bed tells (ok, that could be take the wrong way now couldn’t it?!) While these blankets don’t capture everything that matters to me, they catch much of it. So please know that if you love me you’ll make me a quilt…or else.

People Make Things Happen (stolen from Brady)

There are many people in downtown Vancouver who I have not yet met but whom I know of. They’re people that I am aware that I should meet and I know that it’s only a matter of time ’till I do. Brady is one of those guys. I went to a benefit concert for Brady a few months ago that was hosted by the same Anni that hosted my fundraiser last week. At the event I was never actually able to meet Brady, but I’ve seen his face often since then around downtown. I’ve heard amazing things about him both as a person and as a musician and it was at the fundraiser hosted for us last week Brady introduced himself to me and we had a great (though brief) conversation.

I say all of that to get to this, he wrote the piece below last week and I thought it really interesting so I thought I’d repost it for you.

Social media websites like Facebook can be an extraordinary tool when spreading awareness or organizing interested minds for an important and worthwhile cause. However, in our community today, even without Facebook, fundraisers and donation charities are largely successful because of word of mouth.

I’ve often wondered how our community events, especially fundraisers, would be different if Facebook were not an element.

I recently heard that a neighborhood pub, Shannahans, hosted a successful fundraiser, Saturday July 16th, for the family of Jim Schiefelbein. I never saw a “Facebook event” created for it, and there was no advertising on the wall of the Facebook page for the restaurant. To my knowledge, the only public electronic acknowledgement of the fundraiser event was a comment posted on their wall the following morning, by the restaurant, thanking everyone for their contributions, including the hard working staff, and noting that over eight thousand dollars was raised.

Most recently, I have observed that Facebook has been an excellent channel for communicating to online communities the details of a benefit event, such as the fundraisers hosted by Pop Culture for Ryan Woods and by The Brickhouse for myself. The advent of “Facebook events” seems to be a game-changer. It is genius in that all of the important information is collected in one place within the online community and available electronically, which of course also means smart phone users can access it instantaneously. It beats the hell out of a paper flier in so many ways. And also, as is the case with the technology of social media websites, promoting the fundraiser is as easy as clicking “share,” and immediately the information has been made available to new potentially interested minds. It seems almost effortless in comparison to what we did before Facebook.

What did we do before Facebook?

We did what we still do today; we talk to people. A real fundraiser event is like a chain letter; You tell one person and that person tells two people. It’s a chain of events put in motion by one action, and not a one-on-one. Spreading awareness can be done in so many ways including using the telephone, writing to the local newspaper(s), writing to local officials, sending emails to an ever growing list and using other local advertising channels such as radio in addition to using online social media websites. It just seems like the latter is so much easier right? I suppose the term smart advocate could be used to describe the individual who is likely to advocate through the easiest and most instantaneous method, such as “clicking.” I truly don’t mean any cruel judgement by that statement, it just seems fitting. It still gets the word out but I believe some methods seem to reach farther than others. It takes a village to save a villager. In my eyes it is apparent that in the end the real difference comes with the real communities; the Families, the Life-Long Friends, the gathering of Long Lost Families and Associations, as well as the gathering of New Friends and Associations, and the Church Communities.

* What I appreciate the most about a Facebook event page is that all of the information needed for an individual to get involved is collected and made available in one central location, so that it is easy to find, and because of this, it is easier for someone who may want to get involved to do so.

 

I love that both Brady and I attended fundraisers for someone we didn’t know! I love that we did so because of the nature of the nature of the community forming in downtown Vancouver. People do this, they invite, they spread messages and ideas and opportunities, people make things happen.