Hope in the Face of New Tumors

I’ve been toeing the line lately between hope and reality. There may be a better way to say that or capture what I mean by it because I realize that the truth is that in many ways what we put our hope in IS the reality. But in my context the reality is that I’m dying of cancer. We found out yesterday that there are two new tumors in my spine. They’re small but they’re there (that’s a lot of there’s in one sentence!). One is in my neck and the other is in my lower thoracic spine. Bad news. I also found out that my lungs have not yet fully recovered from the pulmonary embolism back in July, there’s still some residual clotting which means that I must continue on my blood thinners for another three months when we’ll check again. Bad news.

The reality is that this tumor seems to be an active little guy. The reality is not very hopeful. AND YET there is reason to hope. I’ve become convinced lately that hope (for me) can’t come through an ignorance of things as they are. Pretending that this isn’t bad news or watering down the news to something that feels easier doesn’t allow me to hold onto hope in a way that feels authentic. We each find our own ways of dealing with reality in its brokenness (because life is broken isn’t it!) and for me it’s beginning to come through a recognition of the ‘badness’ and a choice to hope despite it.

Ultimately my hope is not in healing. My hope is in resurrection, in a body that won’t decay, in a world that will be restored as God intended, a life lived in communion with others and the Communal God–in the restoration of all things. But I am also choosing to hope for healing, to hope that God chooses to let me experience a glimpse of that future reality today: a whole, healthy body allowing me to live a whole and healthy life.

The more I recognize the brokenness of my reality the more beautiful God’s redemption can and will be. Two new tumors? Ok. So if God chooses to bring healing it’ll be an even greater story. I don’t like it but I think I’m OK with it. If God can bring healing from one tumor…what’s a couple more? And regardless, like I’ve said from the very beginning–God desires to tell a story through each and every one of us regardless of whether we’re aware of our bodies decay or not–the question is what kind of story will we let him tell?

Lastly, and with great joy, I can also say that while there are two new tumors in my spinal cord I have absolutely no new symptoms to validate any new growth. Physically I have been healthier the last month than ever (this is all relative to how poorly I’ve felt over the last nine months of course)! It’s been a great season of health for me and it’s worth celebrating! And because I’ve got no new symptoms to validate the MRI results we are not going to change my current treatment. We will reevaluate in two months and we will continue to monitor my body, looking for any new symptoms. Until then we’ll continue on with my chemo treatment for five days on and 28 days off. Thank you for your prayers and support.

peace.

Can’t Help But Hope

If you live in Vancouver you’ve dealt with disappointment. In the last week we saw our first snowfall of the winter come in all of its glory. It was beautiful, it was exciting, schools closed, the roads were covered…and the rain washed it away before a child could even really play in it. It was disappointing.

I’m realizing that disappointment is something that I spend much of my life avoiding. Disappointment hurts. I don’t want to look foolish by hoping for something that I’ll only eventually be let down by. Hope hurts. Hope causes you to raise your expectations, it creates vulnerability, it puts you in a place where you can be sorely hurt and let down. If you don’t hope for something you won’t get disappointed if it doesn’t happen. If you don’t hope for something you’ve placed yourself in a protected position, hedged against hurt, against potential shame, against embarrassment.

I’ve spent much of my life avoiding disappointment…but I think I’m ready to be hurt by hope. I think I’m ready to be disappointed by hope. I think it’s worth it. And I dont’ think I could have come to this place genuinely without the process that took me here.* In my first seven months fighting cancer my faith journey had to take me to a place where death was acceptable. And it still is. Death is unavoidable, death is nothing to be feared because death has been overcome (thanks for that JC), death has no permanent hold on me. I HAD to come to a place where there was hope even in death (not just despite death but even IN death). I had to believe that God could and would tell a story through my life, my sickness, and my death. But God did not is not leaving me there. God is inviting me to risk being disappointed by hoping for healing. Most people jumped straight to this place, their first (and only) prayer was for healing, their only expectation was that God would heal me. But I couldn’t make that jump both because I don’t fully believe it and because I couldn’t fully believe it until I was willing to see God in healing and death.

Today, and for about the last month, I’m ready to hope to be healed. I’m expecting to be healed. I’m planning to be healed. I might be wrong, I may be sorely disappointed, I may get hurt…but that’s the nature of hope isn’t it? Hope hurts. Or in the words of Foy Vancehope deals the hardest blow, yet I cannot help myself but hope

* That’s a bit of a redundant sentence…a bit goofy, though I’ll defend it’s truthiness to the end…and, yes, I did just say ‘truthiness’

It's Enough: Paying Bills and Finding Jesus

This photo was taken almost exactly one year ago as Vancouver got its first snowfall of the season. India, who loves the snow, ran to the window and sat there in her own little world admiring the beautiful falling snow. As she sat there we heard her murmur to herself “It’s enough” only to then later exclaim to mom and dad “It is, it’s enough!”

Tonight I was blessed to worship with the Renovatus Church community. They’re an amazing crew in general and for a period of time are spending their Sunday evenings reading and listening to the words of Jesus. Tonight the dialog was built off of Jesus’ words and this photograph of India.

For all of time humanity has been looking for answers, most often for easy answers. Generally our questions are about wants, needs, necessities, and preferences. How can I get what I want, why don’t I get what I want, why did I receive what I did not want? The way the narrative of Scripture was written (at least the portion read tonight) was such that the crowds of people were dying for tangible signs of God’s reality, they (like their ancestors) wanted God to meet their needs. So Jesus met their needs with bread and meat. Quite a few thousand people ate bread and meat till their stomachs were filled. But bread and meat were not primary on Jesus’ mind.

Later as he continues to dialog Jesus makes a strange point by saying that HE is in fact the bread/sustenance that they’re looking for–that satisfaction, that their needs and wants are not going to be met by bread and meat (whether it falls miraculously from the sky, is handed over by the hand of Jesus himself, or is found through hard work or labor).  Jesus makes the audacious claim that he is enough. If you’re looking for bread and meat that’ll actually satisfy you’ve got to look at him. Oddly, though, it wasn’t that he was inviting people to look TO him for provision but instead to look to him AS the provision itself.

Needs Met

Over the last eight months my family’s needs have been in amazing ways. Financially speaking we are in a strange place. Major medical bills aside, if we were to make enough money to make our budget and pay our monthly co-pays/medicines/non-insurance covered visits/etc. we would make too much to qualify for our partially subsidized health insurance. So our options are: keep insurance and don’t pay for medicine or be uninsured with my prescriptions. Quite the pickle! (I could go into more detail, but that’s not the point) What has allowed us to make it is that there has always been a small amount of money trickling into our savings account through family and friends generosity. That extra non-salary income has allowed us to make ends meet. Here’s the cool part though, at least on four occasions our savings account has gone down to zero only to be replenished with varying amounts within at least 48 hours. Each time we scrape the bottom of the barrel there seems to be another shovel full of flour to be used for baking.*

And while that’s all awesome and I’m overwhelmed by the beautiful reality of it…it’s not the point. Not everyone who goes through our situation is taken care of by friends and family so effectively…and who’s to say that if this doesn’t drag on that eventually bankruptcy or something financially painful isn’t a part of our future?! The point is not that God has promised to provide us enough bread and meat!

Is He Enough?

The question that Jesus invites us to ask and answer is…is he enough? Am I satisfied with finding my hope in a resurrected Jesus? Am I satisfied in the invitation to follow him, to live with him, to die with him? Is Jesus enough? If everything else in my life fails is Jesus still enough? Is there hope beyond life being tidy, beyond things working out (as I think they should), beyond getting better? I think there is. I think that’s part of what made Jesus so radical–he was wholly connected to the pain and reality of this world while completely transcending it. He provided bread and meat but he invited people into a deeper reality–a more real reality (good grammar right?).

When India was staring out that window there wasn’t all that much snow on the ground. But it was enough for her. Even if it melted that afternoon she was willing and ready to take joy in what was given. I too want to take joy in what’s given, to find satisfaction in what I receive. Even if it all melts away before I’m ready I want to choose to be disappointed by hope than to never hope at all. But hope, true hope, is not founded in what we receive but in who we are given to or who gives themselves to us.

 

* (Late Addition) Let me clarify some by saying that through it all we are still working as employees of Renovatus as one of their daughter church plants. While things are moving slower than intended due to my health we have continued the work and continued drawing a part-time salary. Some have questioned where our income comes from and if it will ‘mess insurance things up’ if they send the church money. The answer is no, we are always in need of new financial partners to support Grassroots Conspiracy. If you’d like to join you can do so here: http://su.pr/1VwRyQ . Hope that clarifies!