Surprise! A few stories I never thought would be in my past

I just never thought that I’d be able to claim these things as experiences that are a part of my past. Life brings surprises doesn’t it? Hmm…a few stories…

  • After ripping one out, for thirty minutes I sat there with my wife and our twenty-eight year old female nurse as she drained my bladder via a newly inserted temporary catheter. We sat there as she held me gently and talked about our kids and the weather. Later that night we all played cards together. I just never thought that, number one, I’d have five catheters ripped in and out, and number two, that I’d be playing games with the woman who did it! Awkward? No, not really.
  • On the same topic…I just never thought that I’d ever walk around with a bag of urine strapped to my leg…in shorts…the worst was when I was doing rehab therapy and had to lay down and do leg lifts. Lets just say that those bags don’t have any kind of valve to keep the fluid from going back and forth, back and forth, back and forth. Gross.
  • I never thought I’d have to re-learn so many simple things. At different points I’ve had to learn how to re-put on my clothes/shoes, re-learn to drive, I hope to re-learn to ride a bike, obviously re-learn to walk, and eventually re-learn to run among other things. There are so many things I took for granted! Who’d of thought?!
  • I never thought I’d have to inspect my feet like I have leprosy. Just a few weeks ago I got an infection on my middle toe. Mostly it was due to me not realizing that there was a sore that needed attention…because I couldn’t feel it. Similarly I never thought that buying new shoes would be so difficult! I can’t really tell if they fit, if they’re smashing my toes, etc. Strange.
  • I never thought that my four year old daughter would be a faster runner than me. My kids keep inviting me to race…I think they like that they keep genuinely winning!
  • I never thought that X-Men would bring me to tears.
  • Pit swelling. I never thought that I’d suffer from armpit swelling. Yes, it’s a thing. It’s when you gain water weight in your armpits because of those lovely and terrible steroids. Ever suffer from excessive pit fat? I do.
  • My friends call me Tony the Tiger because I’m covered in flakes. No joke (yes it was). Due to my meds (I hope it’s the meds!) my body is a peeling mess. From my feet to my head my skin scales off like a lizard. Its gross. I’m gross. And, yes, that just happened (referring to lame Tony the Tiger joke)
  • I don’t want to get gross on you here (the catheter stuff wasn’t too gross was it?) and I won’t turn it into a story…but lets just say that for three weeks of my life I’d head into the bathroom with a plunger, baby wipes, and latex gloves. It was a difficult time for me, and one that I’d like to forget.
Oh the stories, oh the things I just never anticipated, oh how I didn’t get into some of the more grotesquely awesome stuff! (you’re welcome)

Assumptions

Judge me if you will. I partially judge myself ‘cause I honestly didn’t see myself as an iPad kind of guy. We always joke (though we’re kind of serious at the same time) that we don’t have to worry about people breaking into our home cause we do not have anything of value for them to steal. A burglar would be sorely disappointed upon breaking into our house to find no stereo system, no high end computers (the laptop I was given is a nice computer but I’ve always got it with me!), no jewelry,  no TV’s, no blueray players…nothing really of value to steal. We live a pretty cheap life, driving a crappy used minivan, drinking out of mason jars instead of matching glasswear, not owning a single new piece of furniture (actually, this one came to an end last week when for the first time ever we bought a bed frame…a new bed frame!). So had you told me a year ago that I’d save up some cash and buy an iPad I would have judged myself. But oh how things have changed. Oh how my perspective on many things have changed. Oh how our perceived needs (and wants) have changed. To purchase a toy for my family that will give them something to do during the hours of waiting-room wait time that they have in store doesn’t sound so criminal anymore!

We do that don’t we? Some of us do it more than others. Some are addicted to it hardcore and it shapes not only their identity but how they feel and think about every single person around them. We make assumptions. Here are some other assumptions that I’ve made in my own life…

My kids will not be picky eaters. I remember Jess and I saying this as we raised our newborn baby boy. We fed him fresh asparagus, cauliflower, leafy greens, and all those healthy things that will shape his palate for years to come. He’ll learn to eat it or he’ll go hungry! Well, when Jones was two or three he went about six months without eating dinner. No joke. We made food, he complained, we told him that ‘this is what’s for dinner’, and he chose to go without. For. Six. Months. Turns out he’s got some special needs associated with texture and such that causes certain foods to not really work in his mouth. Turns out that ‘sticking it to him’ was NEVER going to work on its own. Hmm…so now I’ve got a picky eater.

I’ll never divorce my wife. Ok, don’t freak out! We’re not getting divorced and I do not ever intend to do so! But as I’ve seen marriage after marriage fail around me, as I’ve seen people I respect do unrespectable things, as I’ve seen people who would ‘never ever get divorced’ get divorced I’ve had to face the reality that this isn’t an assumption I can make. It’s a constant choice I must make, it’s a series of choices that Jess and I must make, it’s thousands of tiny choices to be healthy that leads to a healthy and sustained marriage. “I’m never going to be that guy”…well…nobody ever plans to be that guy! The only way not to be that guy is to choose daily who you’re going to be.

My kids won’t ever act like that in public. Fill in the blank here in both location and action. My kid won’t ever do THAT in public. They won’t ever act like THAT in a restaurant. “My kid will NEVER throw a tantrum like that…” Oh, how many things like this I’ve thought. Oh how many parents I judged before I was a parent. Oh, how many assumptions I’ve made about how my children will behave. Turns out my children are humans, turns out they have thoughts and opinions and feelings. Turns out they sometimes make poor choices in public…turns out you’re not a bad parent if your kids act out in a restaurant.

I’ll never have a yappy dog. There’s probably a better way to write this one. But plain and simply I just never ever thought that I’d have a Chihuahua. Ever. Look at me now. Judge me. I deserve it.

I could go on and on about assumptions I’ve made (oh, how many of them are associated with my children!). Some of you live your life assuming that you know what’s really going on for everyone around you. Your first (and last) thought is that your perception of other people’s reality is the correct one. You more easily walk through life assuming realities about others based on your own observations without ever asking a single question or engaging in a single dialog. You honestly believe that you can know others without engaging with others. Careful. Be cautious. Beware. Life is too messy to live this way! People and life are too complicated to make judgements from a distance!

As someone who puts himself out there publicly probably too often and in too vulnerable of ways I’ve found that I put myself in a position for people to make lots of assumptions about my life and my decisions. Because I write (too much?), because I do awkward things like communicate publicly how much I make, or ask for money, or share my fears about dying, or whatever it often gives people a false sense of mastery over my motives and my reasoning. At times I’ve been hurt, at other times I’ve gotten mad, and at other times I’ve just laughed.

I struggle with making assumptions about others, about the future, and about how things should go. Assuming is the easy way out, it requires less of me, it expects less of me, it shapes me into a person that doesn’t need you to know you…and I don’t want to be that kind of person.

I might put myself out there too much in too many ways and it might come with some risks…but I think I’m going to assume that its worth it.

Old and Young…we all bleed

Jess’ grandpa and I have a lot in common. You wouldn’t think it at first. He’s a retired mechanic who lives in the high desert of California. He enjoys fishing, he’s crass, and he’s got a cool glass eye…I don’t posses many of those attributes.

But we do have lots in common and last night it was funny to talk about.

“How much Coumadin you takin’ these days? Oh, wow, that’s quite a bit! And they’ve got you taking Asprin too? Yeah, I’m down to 5mg a day but I’ll still bleed like a mother if you cut me! I used to take more but as my steroids get lower so does my need for it. You too eh? Yeah those ‘roids will mess you up.”

We talked about our blood thinners, about being on steroids, about putting on water weight, and about our procedures* we’ve each had done. We swapped stories about anesthesia, which pain killers we prefer, and getting our blood drawn all too often. Good doctors, bad doctors, new medicines, bad side affects…so much to talk about! So much in common!

On this level (and maybe only on this level) we understand each other, speak the same language, and have a common story. We’re living it out in opposite order–he never had a single health problem ’till he hit 65…then the flood gates opened. I, on the other hand, am getting all my procedures and medical issues out of the way early so that I can cruise once I hit 65 (that’s my plan right?). And here we are meeting in the middle.

It’s funny how all this works. Who’da thought that Papa BJ and I would ever have so much in common. Life’s funny like that.

 

* That’s what you call surgeries and such when you start to age.

Can you Handle This?

I’ve been thinking a lot lately about the immortal words of Destiny’s Child

Can you handle this?

Can you handle this?

Can you handle this?

I don’t think they can handle this.

In the movie 50/50 that I blogged about recently the main character’s girlfriend cheats on him in the middle of his cancer treatments. She doesn’t just cheat on him but obviously fails to be a support to him in many ways. On NPR, speaking about the story behind the movie, the writer shared how the girl friend character represented all those who were unable to walk with him in his journey of fighting cancer.

This really resonated with me. I have had an amazing support system through all of this (and continue to be supported in amazing ways) but there has been loss. There’s been loss of relationship in different areas of my life and in many of those areas it’s come down to some unknown element of that person not being able to deal with the reality of what cancer brings. At first I was a bit hurt by it, I felt a bit abandoned by certain people who I thought would be present during the sickness because they were present before the sickness.

Today I feel much more compassion and understanding (I’m grateful to the movie for helping me to process some of this). While we’re each responsible for our own choices, there is an element of reality to the fact that some are just not fully equipped (for whatever reason) to deal with the harsh realities of a friend fighting cancer (one could probably fill in the blank with many different diseases or crisis’ here). We all have baggage and some of our baggage does not allow us to walk in certain places. Some people just can’t go there, it’s too intense, or too painful, or too…something. On the flip side, some of our baggage allows us to walk with people in places where very few others can go! We’ve had some of these people too! Surprising people, previously unknown people have stepped up in the midst of the last five months to care for us in ways that we never would have expected…and almost %100 of the time it’s because they’ve had experiences that allow them to go with us to some of these places.

I don’t want to blame people anymore for their lack of ability, for their lack of experiences, for their lack of whatever that has kept them from being close during all this. It’s not fruitful and it’s also causing me to wonder how it reflects on me! I know of people in my past that I’ve abandoned because it was easier to forget than to care…and I know there will be more in my future! I want to extend the same grace to others that I hope has and will be extended to me.

Regardless, I grieve the (temporary?) loss of some relationships along the way, but I’ve come to understand that it’s just another exhibit of our humanity playing itself out in real life. I don’t want to blame people for their brokenness as much as I would hope they wouldn’t blame me for mine. Destiny’s Child was right, some people just can’t handle this…my body’s too bootilicious…but then again, so is yours.

Glossing Over The Reality?

I worry that I see the world through rose-colored glasses, that I’m detached from reality and am living in some alternative universe where cancer doesn’t suck and death isn’t scary. Is this worry legitimate? (Just know that the answer to this rhetorical question should be answered by the fact that my wife would be laughing right now)

In general as a person I tend to minimize the bad and play up the good*…which sounds like a swell thing until you realize that at time it edges on deceitfulness and it also has cultivated in myself a lack of awareness to reality as it truly exists. For example, I’ve had to re-learn, to recognize the symptoms in my body because for most of my life I’ve downplayed any potential ache and pain and written it off as nothing. I honestly don’t notice when somethings wrong with me because I’ve trained myself to ignore everything.

“Ryan, you look sick. Are you feeling ok?” “Nah, I feel fine” (I ALWAYS feel fine)

In many of my blog posts I try to be honest about the reality of life as we’ve been experiencing it, the good with the bad, the positive with the negative, the ups and downs. But to be quite honest my baggage is such that I’ve trained myself to glaze over the bad and emphasize the good. I’m not lying, I’m not fooling anybody, I’m sharing what I am really feeling and thinking…but is what I’m feeling and thinking the reality?!

And so I find myself struggling through this journey of not only fighting cancer but trying to rediscover myself, rediscover my emotions, rediscover reality as it is. The goal isn’t to pout more or to become more pessimistic–no, the goal, I think, is awareness. It is to be present–present in my surroundings, present in my suffering, present in my body, present in my emotions…to be present.

 

* This is what an Enneagram 9 does!