January's Downtown Dispatch

I look forward to publishing these every month…though, if we were honest we’d know that they don’t come out monthly (shhhh, don’t tell anyone). If you don’t receive the email version you can sign up for it on the side bar on your right. Also you can always click the menu that says “Downtown Dispatches” at my blogs home page in order to read the Dispatches as far back January of 2009 (oh, how so much has changed!).

Without further adieu here is January’s Dispatch from Downtown. Read it, print it, highlight it, study it, put it on your fridge, pass it around to your coworkers (I’m sure that wouldn’t be weird right?), send it to your grandma, and forward an email on to seventeen friends (it’s not spam if its good right?).

You can read it here

 

An Update: Chemo, Drugs, MRI’s, CT Scans, and Feeling Better

(I’m sorry, this photo has nothing to do with my post…but I stumbled across it and it’s absolutely awesome. Couldn’t pass up including it)

Well the last week wasn’t too bad now was it? I just finished my fourth round five days on 28 days off chemo treatments and it went swimmingly well (all things considered). It has been a strange month following my previous miserable bout of chemo, back pain, infection, etc. Physically I’ve felt really well (the best I’ve felt in a while), I’ve had pretty good energy, and only the expected amount of back and leg pain. Of course I still feel like I’ve been missing out on life in incredible ways as it’s been the holiday season, back to school season, my sister and her family have been in town, and there’s just been some important catchup with the fam to focus on. Tomorrow or the next day should be my last days feeling the effects of my last set of chemo pills and, like I said, it’s been a great round. I had headaches, body aches, sleepiness, and some weird hot flash kind of stuff but at no point was I down for the count. At no point was I miserable beyond belief. At virtually no point was I unable to fake that I felt fine (insert winking emoticon here).

On Monday I went in for a head to tail MRI session. It was a little sooner than I had anticipated having it done considering it was only a month ago that I had an emergency MRI done on my tumor. But it’s good to get another session out of the way and in about two weeks I’ll meet with my oncologist to discover that it probably won’t tell us much more than what we already know! (lets be realistic here huh?)

I’m looking forward to scheduling a CAT scan sometime in the next two weeks to confirm that my lungs have recovered from the pulmonary embolism from six months ago. If they have recovered (and all signs point to the fact that they have) then I can get off these nasty blood thinners once and for all! It’ll be one more gnarly drug that my body can be free of as it seeks to function in a healthy, holistic, and eventually cancer free (positive thinking right?) way.

So there’s the update. Thank you everyone for your love and concern.

peace.

The Last Month…

It’s funny, depending on the day or the hour you catch me my answer as to how I’m doing or how things are going will be vastly different. The last month has been a whirlwind–at some points a whirlwind of nothingness and at other points a whirlwind of excessive catch up. Let me start off with the tough stuff and end with the goodies…

  • Back pain is a pretty normal thing for me (duh). It usually comes and goes, gets bad for a short period of time and then goes away. But the back pain that flared up about a month ago did seem to want to go away. Instead it slowly grew worse causing sharp pains in my back and abdomen. It got so bad that anything that created pressure (coughing, sneezing, laughing, etc.) would cause such intense pain it would occasionally bring me to tears. Needless to say it sucked. We tried Oxycodone, Vicodin, alcohol (just kidding) but nothing worked. The only thing that brought reprieve was laying down in bed.
  • Right as the back pain got to its worst it was time for a new round of chemo. I started that round on a Tuesday night and by Thursday I started feeling the effects.
  • Lastly I’ve been fighting a gnarly little infection in one of my toes. Simultaneously as I started chemo the infection took a turn for the worst and the doctors saw fit to give me some iv antibiotics and two other pill form antibiotics. What was most miserable about these antibiotics was that they made my stomach incredibly sick. So between taking two different antibiotics four times daily and taking chemo pills once daily I was pretty much constantly taking a medicine that was making my stomach sick. No fun.
  • As I’m fighting all this crap and sleeping eighteen hours a day Christmas was barreling down upon us and I was no help! Jess was frantically trying to take care of me, take care of the kids, work, AND get ready for the holidays. It was an intense time and we weren’t making much headway.

So that’s all the tough stuff. Let me now share with you some of the good stuff!

  • After being into the ER twice I was finally able to meet with both my oncologist and my naturopath on Wednesday afternoon a few days before Christmas. Between those two visits and the stuff they did to/gave me by Thursday morning I was a new person. The back pain was completely gone (turns out it wasn’t back pain but actual nerve pain from my tumor pressing on my spinal cord) and I was up and moving again…just in time to get ready for Christmas!
  • We were able to spend a whole day with my dad’s side of the family out in beautiful Yamhill County. It was amazing. We hung out, cut down a tree, sang carols, and drank tea. Many of the family skimped on gifts for themselves in order to show more generosity to my family. They showered us with notes and letters and written down scriptures of hope. Like I said, it was amazing.
  • Christmas this year was going to be at our house…but if you didn’t already put two and two together our house wasn’t all that clean at the time. One of the greatest Christmas presents we received this year was my mother-in-law and sister-in-law coming to our house and cleaning it top to bottom. This gift allowed us to focus our pre-Christmas time on being together as a family, making snowflakes together, Christmas shopping, etc. It was a wonderful gift that truly allowed us to enjoy the Christmas season.

Man, I could go on and on concerning the generosity we’ve experienced in the last month. People have flooded us with meals, thoughtful notes, and more. Our Christmas Eve and Christmas morning times were calm and fun and memorable. Since that Thursday (when I started feeling better) I still have not left the house much because it’s been a time for our family to be together. I’ve missed seeing many of you but am glad to miss out on seeing y’all if it means that I get to be with my wife and kids more.

I know this update was a bit scattered but it’s been an intense month (an intense year!!) of changes, of really really good times and of really really rough times…that’s life though I guess!

 

The Bad, the Good, and What's Next

Well I keep typing and erasing and typing and erasing and just don’t have much to say right now (aside from everything that’s been typed and then erased…which would eventually add up to quite a bit of mishmash I’m sure!)

Let me just give you a brief update with regard to where things are at in our lives today.

I’m writing this on Friday, and after today I will have ONE more radiation treatment (on Monday) and three more chemo treatments (Saturday, Sunday, and Monday). While both the chemo and radiation take a progressive toll on my body this week has been a better one with regard to energy. The two primary negatives as this point with regard to health are…

  1. Swelling in my spine (due to radiation) caused what is most likely temporary nerve damage across my belly and sides that hurt pretty intensely for a day or two. To compensate they put me back on steroids to reduce inflammation.
  2. Starting on Monday of this week the amount of radiation hitting my esophagus started to cause pain and swelling thus leading me to a soft/liquid diet for the next few days.

The good news far exceeds the bad! Here are some of the great things that we’re seeing or hearing these days…

  1. My vitals are through the roof (in a good way). Ranging from my yeastiness, to my iron level, to the amount of blood my body is producing my body is doing “better than it should in amazing ways” (according to my oncologist).
  2. We’ve been waiting over a month to receive a report back from a Cambridge research lab in order to get more info about my tumor. The exceedingly long wait was starting to make us question…but as it turns out the researcher in charge of my sample was gone on vacation for the last month. I’ll take that as good news!

Regarding what’s next in life for us here’s what we anticipate…

  1. Somewhere around one month from my last radiation treatment I will go in for a fun session of head to tailbone MRI’s. They wait approximately a month because they want to assure that your body has time to recover, to break down the (hopefully) dead tumor, and to accurately reflect your bodies new cancer free reality.
  2. On October 12th the monthly “tumor board” will gather around my scans. The tumor board is a neat gathering of oncologists, radiologists, neurologists, surgeons, etc who all meet monthly to talk about the coolest tumors in town. On October 12th they’ll look at my stuff and assess what’s next for me. Later that day I’ll meet with my oncologist who will let me know the results and future proceedings.
  3. Medically what is most likely is that the cancer in my spine will be gone and there will be no other cancerous spots in my body. I will then have MRI scans every two months because (medically) the assumption is that the cancer will come back. The difference between my original diagnosis and my current one is that previously there was little (medical) hope of getting rid of the cancer at all whereas now the hope is to get rid of it each time it returns.

Things have been rough for the month of August as I’ve spent it sleeping and my wife’s spent it being a single parent (all of you single parents deserve so many more hugs than you receive!!!). My hope (and anticipation) is to view September as a time where we can slowly reenter into life, work, and continuing our downtown Vancouver work. While things may have been rough this month it would have been absolute hell without all of you. Over the last three months (surgery was on May 31st) we have had nearly fifty different people provide food in some capacity, we had nearly 100 of you visit us in the hospital, we were blessed by the amazing fund raiser at Pop Culture (that continues to linger around some downtown Vancouver restaurants/stores), we’ve had an amazing team of people help us with mowing the lawn, doing dishes, sweeping, and watering our struggling garden, and finally there have been literally thousands of people praying for us from all over the world. You all have been amazing. Thank you.*

 

*this isn’t a “thank you and you’re done”. Oh no! We’re not done with you yet! Please keep praying for us and please keep caring for my wife who has lots of recovery to do (my physical recovery is nothing compared with the depth of what she’s poured out of herself over the last three months). We are so incredibly still just in the middle of all this…and thanks to you we’ve made it thus far in such away that causes our doctors to use such words as “miraculous”. We love you all. Peace.

Joining the Dispatch Fun?

Since January of 2009 I have put together a monthly (OK, maybe it doesn’t always turn out to be monthly, but that was the goal!) newsletter. It has morphed and changed over the years as much as I myself have changed and become a different person focused on different things. Today I refer to it as a Dispatch from Downtown as it chronicles the activity and dreaming of the Grassroots Conspiracy movement that we are a part of starting here in downtown Vancouver, WA.

One of my goals is to not just tell you about what we are doing but to allow you space to enter into some of the life and movement of our downtown community. Therefore much of the content in these Dispatches is written by amazing individuals from our neighborhood who are living and dreaming the Conspiracy into reality. As I spend the next week putting the finishing touches on June’s Dispatch from Downtown I want to invite anyone and everyone who is interested to sign-up to receive it! If you’ve been following my blog and our journey through all this health stuff then you’re fully aware that what there truly is amazing things happening here in downtown Vancouver. There really is a Grassroots Conspiracy emerging where a whole community is developing around the Jesus idea of love, compassion, dying to self, and generosity…I just never expected or intended to be the guinea pig in the middle experiencing it all! I thought I would be the one doing it but instead I’m the one receiving it!

So my invitation to you is if you are not currently signed up to hear the stories, to read the report of the amazing things going on I would be remiss if I did not invite you to join in the fun! So below is a quick and easy way to join. Oh, and please feel free to invite your neighbors, friends, co-workers, aunts, uncles, chia pets, second cousins twice removed, mothers, fathers, and small little babies to join in the fun too. The story is getting too good to miss out on!
peace.

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